#5: Still dancing inside!

Well the dancing thing has helped! It has given me a way of expressing my creative side as well as my urge to worship God. I've had to time myself with my ipod clock- keep it under roughly 5 or 6 minutes (this month); 1 song, which is what I can cope with in terms of aerobic exercise at present.


I do strength exercises on alternate days still. This is only when I have not over-done it. Last week, over-doing it was seeing a few too many people after a trip to the hilly Dandenong mountains with my good friend from France (here only a month!). I also won't do exercise during post-exertional malaise (PEM), crash-time and for a few days after this, not until my 'immune flare-up' (as now succinctly described in the latest article  on immune signatures of CFS/ME (wait 45 seconds to download for free)) has resided. Discerning when to build a little strength again is quite hard sometimes... but I can usually tell nowadays.


I have actually weakened in my exercise capacity, and thus overal energy capacity. But hey- winter has set in, chills get caught more easily, especially when my ability to regulate body temperature is akin to getting a drunk man to walk straight. Again, part of the package. A package that means I need to be gracious towards myself when I get it wrong, whilst forgiving and educating others when they don't understand..


However, I need to learn from my mistakes. Always blow-dry my hair in the new house, even if it's sunny outside (or I will get a chill and crash). Try to do something biggish with a FORTNIGHT gap inbetween, not a week. So I probably won't go to Phillip Island this weekend as planned. I'll take it easy.


Gifts have come to me from outside and inside, to encourage me in the bad days of PEM, which was last weekend, and then some.


Outside: My friend Anna came today to play me a song on her guitar from a psalm in the bible. It was too loud, but it was beautiful. It wore me out when she strummed enthusiastically from less than a meter away (sensory overload)! We laughed about that when I told her because she thought she was blessing me, which she was- kind of!  Then she prayed for me. 'God loves you, Kara!' was the message. Beautiful! Very thankful.


From inside: remembering that God is all I have, and that if I'm to die now, I lose nothing, and gain everything (it often feels like death during PEM). 'To live is Christ, to die is gain' (Phillipians 1:21). Heaven is my home.


Another Outside encouragement- Reading the book of Lamentations, now in chapter 3. Along with the cries of the writer, I can also recognise that though I do not suffer because of specific sins (in contrast to the Israelites experiencing the punishment of horrific exile, as warned), it is true that considering my stubborn shunning of the Author of life over the years, nothing I do really has me deserving of the gift of life itself, let alone the deservedness of good health. This is actually encouraging because it reminds me again of God's grace to me, that he even graciously breathes life, keeps my heart-beat daily, enough to pour out my anguish to him, comforting me in the knowledge of his compassion, loving presence and faithfulness. And also, that God does not 'willingly afflict anyone'.


The writer repeatedly uses the ancient Hebrew terms (transliterated) 'yhl' and 'qwh' to refer to 'hoping' and 'waiting expectantly' simultaneously- for God. The promise is that for those who do so, his goodness comes. It's certainly something that any one of us can do! That's all God wants! What a relief: no more performing, just waiting for Him, with expectation that He is enough. We don't need numerological studies for a date to do this, unlike the apocalypse predicters this past weekend!


Recalling God's compassion amidst loss is the center-piece of this little bible gem Lamentations, as well as it's 3rd chapter, as is helpfully summarised by Barry Webb in 'Five Festal Garments: Christian reflections on The Song of songs, Ruth, Lamentations, Ecclesiastes and Esther'. I recommend this read for anyone who wishes to study this book and understand it!


What's also kept me dancing on the inside has been the encouragement of friends who have responded to the Chase Community Giving request this week. If you haven't already, vote for 'Whittemore Peterson Institute' in CCG, which supports research, advocacy and treatment for the pathophysiology of neuro-immune diseases such as ME/CFS, fibromyalgia, atypical MS, and autism. I emailed all my family and friends, and most of them haven't responded yet! Sometimes people need a little reminding. I'm encouraged by a fellow sufferer in the US to keep on at it, without shame or fear of annoying people. It's worth it, I have to remind myself! 


We all need hope, and I have discovered great perseverance and hope from fellow sufferers through years and years of this. Thanks for your inspiration- you know who you are! For me, my sure hope is in God, as his promise of full healing is found in Jesus who has healed, who does still, and one day that is what I will have for certain in him, physically, emotionally for good. This future hope helps me to keep working towards it today, and God's Spirit himself empowers me to dance towards it too! 


The following bible passage shows how this can be anyone! Simply through faith in Jesus- nothing religious/requiring of anything good on our part! Since we aren't, and can't really...


"Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ. Through him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God. More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us." Romans 5:1-4 9 (My italics)


Hope to you!

lesson #4: All things, good and evil can be used for our ultimate good.

So for 2010 pretty much, not much has changed physically for me. I'm still pretty housebound. I now can't walk that far, like around the block is a Great day for me, physically. If that, I feel on top of the world! I still keep doing my strength exercises like push-ups and crunches, but then one day I might accidently do one too many on top of a busy day previously, and before you know it, I've crashed. Back to square one it seems, after a week almost of recovery. My body is SOoo sensitive! I have to walk on eggshells for it, it seems, and even then, one false move, and merciless punishment awaits. Sickliness to be abhorred!


But I've been learning again and again over the years the following: 
(Romans 8:28-29)
²⁸ And we know that in all things God works for the good of those who love him, who^[a]have been called according to his purpose. ²⁹ For those God foreknew he also predestined to be conformed to the image of his Son, that he might be the firstborn among many brothers and sisters.


The context of this is 'our present sufferings' which we're told are not even worth comparing to the glory that will be revealed in us. (v18)


I find that very hard to grasp when the sickliness seems so overwhelming, overpowering. But it's in these moments that I recall that even this moment of yuck is being used by God for my good...Why?


It's so I can be conformed to the image of his Son: Jesus! What an honour! He is using my sufferings to help me become like Jesus- because Jesus had to suffer faithfully before God to demonstrate his complete obedience:
(Hebrews 5: 8 'Son though he was, he learned obedience from what he suffered ⁹ and, once made perfect, he became the source of eternal salvation for all who obey him.')
 If I'm Jesus' sister, then why would I get out of learning the same, his way? 
Jesus was sinless, yet needed to demonstrate his obedience for God's saving purposes. I'm sinFUL, and need to be CHANGED through his obedience-bought salvation. I need to be changed by him, through trials, so that I can learn what it means to really honour God when things aren't as I want, or even should be.
To learn to obey and rejoice in suffering is...:
To really live for his glory, not for pleasure.
To live for heaven, not this earth and it's gifts.
To live for Jesus and not for myself.


Suffering can help us fix our eyes on what is important...relationships, love, the meaning of life, of death. And like patience is only learnt when it's tested by an annoying child (or mother?!), obedience and becoming like Jesus is mostly learnt it seems from going through experiences that test that allegiance.


The test could be anything!
But it's soo worth sticking it out. Because the crown we receive is not worth comparing to our 'brief' struggles, no matter how arduous they feel. Again,  Romans 8:¹⁸ I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.' And 2 Cor 4:17 'our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.' 


^{Wow. How amazing must heaven be? To outlast and outshine ALL my problems put together!} 
So, how do I endure and keep perspective?


I find comfort and focus in thinking and daydreaming of heaven. When things are horrible, it's often then I'm prompted by the Spirit to rejoice in God, because heaven awaits, and it I don't want it to be long, because I'm finding earth really hard right now!! So then I pray, 'Come Lord Jesus', and things feel right. Then I remember that God still has a plan for me to be a blessing to God and others on this earth before he comes- to see heaven invade earth now, and I've a heck of a lot of changing and blessing to do and be still, so I push into prayer and Jesus. I repent of my failings and distractions, and relax; 'cos I know it's Jesus who justifies me each day as God's child, through his sacrifice, not my good works. I get snagged so easy with addictions to ebay, the net and other things, then the battle changes to other things. Say, spiritual pride when I'm doing well; what a joke!  But God is winning in my heart, bit by bit!! He'll finish the job on me, I'm promised; yes.
¹⁸ So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. (2 Cor 4)


So, suffering can be the most useful and beneficial thing we could experience, if we learn through it Jesus' way.


That's all for today (a sickly one at that!)..:D 

lesson #3: Dying, death, mortality and more death....it doesn't have to be so bad!

Disclaimer: I am no emo (though if YOU are, that's fine with me). But it has to be said that death is inevitable. That is one thing that we can be certain of, no matter how much we might want to avoid being dogged about 'any one truth'.
And no average person I know actually wants to think about it, do we? I even avoid all the 'I'm sick' blogs, stuff riddled with unease and dis-ease.
 'My sister's keeper' with feisty Cameron Diaz and her cancer-ridden daughter just had me sobbing all afternoon. The movie is honest about the reality of death. It's sad, horrible and not right. The uncertainty is merely when, the sister narrates. The best question I've been challenged to keep asking myself lately is: How do I die well? That is, not only at my deathbed, nor as though 'this could be my last day, so how make it great?' (both these important), but also everyday, dying to myself?

All of our bodies are disintegrating that bit more everyday. I (having CFS) feel 'closer to death' more days of the year than those of us without ongoing illnesses, as another CFS friend said to me once. I can feel so flat, weak and lifeless that everything all could just melt; some hours, some days. It feels my life really doesn't have much to it at times.

This is not a pity plea. The point is, I'm actually finding this experience (especially lately) an opportunity to enable this confounding spiritual power to rise up in these moments. It's incredible. Don't miss out on this trip, if you're near death, or not!

I implore you not to ride this off if you're atheist or just not a 'spiro' sort.

Here are some actual, historical and seemingly unrelated facts that everybody should know about, I believe (christians, it's good to be reminded!).

• Jesus of Nazareth was whipped, abused and killed for claiming deity; being God- at around 33AD. He died. But he also said it was his father's divine choice/will, over-and-above it as a consequence of his 'blasphemy'.

• Jesus also claimed he'd rise from death. Destroy his 'temple' (body) and rebuild it 3 days later*.
• Jesus did rise from the dead 3 days later. (over 500 witnesses*, no body to be produced to negate this, impossible for him to get out of a stoned-up tomb alive, even if at best in a coma, people willing to die for the truth of it, the list goes on. Check it out for yourself here (simple summary) or read some books*.
• Jesus said it was for payment, 'as a ransom for many (people)' (Mark 10:45), a payment for sins, our offenses of high-treason again the most High God- namely 'we're God, not you, get stuffed!'. He said that anyone who believed in him (Jesus), would not die, but have eternal life (John 3:16), all because of God's love for the world; for us enemies so we could become friends again with God. It's a cosmic swap; we sin, Jesus pays for it in death. He rises to life, we get his life, his righteous identity and Spirit too, plus inseparable connection to God as children. Seem a little extravagant? Indeed. Unfair? Seems so. But God's justice is shown in that he didn't let horrendous crimes go unpunished (Romans 3:25)- they were on the cross. God certainly get's the raw end of the deal it seems. Very weird. Outrageous in fact. But it shows real LOVE, doesn't it?!

So if he did rise, and thus showing he is God and thus does give eternal life to believers,........

..then everything really, really is ok, as you trust him, whenever. It's a promise. Some promises I don't trust, like when some of my family members say they'll be somewhere on time, *ahem. But Jesus to me is always trustworthy, 'cos he's proven it. In history, and personally to me everyday. Jesus never promised a problem free life. His was riddled with our problems, so why should we expect better? Here are some promises for later, mixed with experiences for now, that believers have, that I've experienced even more richly through suffering:

Now: His indestructible life and presence within.

Later: fully glorious ('fully sic') bodies after we die (Think super-heroe style? Or not, up to you:)

Now; freedom and forgiveness, a love-filled heart and purpose, joy, hope, peace...

Later; perfect bodies, minds, jokes, relationships, water, animals and earth.. everything thriving in the beautiful, glorious, so-hot-it's-blinding light of Jesus the King.

This bible verse is a clincher: "...we know that the one who raised the Lord Jesus from the dead will also raise us with Jesus and present us with you in his presence." (2 Cor 4:14)

The closer I feel to death on some days, the stronger this hope also feels. “For we have this treasure in jars of clay, to show that this all-surpassing power comes from God and not from us. (2 Cor 4:7)” That is one of the miracles for me now. I long for heaven more, am more joyful and full of peace. Though bed-ridden often, I'm really happy (of course I feel sad too, at times)! I love God and his ways more, and as expected, long often for this mortal body to disappear to be 'swallowed up by life'. I want that sooner rather than later often (*mutter: 'stoopid body!')!

But it's not suicidal. I actually just long to be with God now, and later too. That's probably the biggest miracle, my changed heart.

So how does this help me live well, and die well, daily? The bible talks about dying daily, as part of the life of Jesus. Oxymoron or paradox:

'For we who are alive are always being given over to death for Jesus Christ's sake, so that his life may be revealed in our mortal bodies.' 2 Cor 4:11'

The author, Paul, here is talking about the persecutions that go with following Jesus, and the hardships.

So my conclusion is thus: it would be selfish of me to just keep this beautiful joy and hope to myself and just stay in bed (as I must, often), hanging out for heaven. I can't and shouldn't, though I'm tempted to. So this is the actual reason why I blog now. I wouldn't bother, otherwise.

God's love makes me want to tell everyone about Jesus, to trust Jesus; no matter how stressful, hurtful, horrible, sickly or deathly their/your situation is. For me to die to me, I need to forget my fear of you, of people and what they think of me in my 'preaching'.

God's love makes me a thankful for his grace and compassion to do such a thing for us. To die to myself means to respond with grace and compassion toward others and reach out, despite my own needs, despite the cost of energy it may have. To spend what little energy I do have on glorifying God, by loving others, praying for others, loving him.

Choosing to stay with a sick family meant we all had conjunctivitis eyes (can you tell?) and I was trashed.  But i felt for Jesus' love, it's a small example of dying to myself to stay and love, despite the costs on health.

I don't always do this, sadly. And sometimes I don't know how. I'm torn between keeping myself healthy (to be better for later things) and doing something now that I know will make me worse but will benefit others now. And sometimes I just do what's best for me! Selfish? Sometimes. Sometimes not. It's a grey area- the answer changes from day to day. But thankfully I have a personal spiritual advisor 24/7 for those kind of questions. I'm a slow listener, but getter better with maturation. And hey, at least there is a cost to count (ie. limited energy)! That's reassuring. It seems that everyone could call themselves christian and it not cost anything, and thus mean nothing, these days. 

So, glorifying God. Again, I'm a slow learner, but I do see changes as days and months go by. 


If you are not a God-nutter, have you thought about death and what it will mean? Have you considered Jesus' story, the evidence and his offer? All good things in this life will come to the end. If you join Jesus, only the best and unspeakable joy, love and much more will be given along with the hardships, and later so much perfection and more that is unthinkable to the most imaginative of us. 

If you are christian, do you have deathly, testing moments these days that can be embraced to meet Jesus in his death, and let him meet you there? The cross is not merely an access code to heaven, but a means of mentoring and helping us along the process of reaching our deaths.

 Are there any trials at the moment that can remind you that you are mortal, a brief moment in history (like grass on a 'black saturday')? And that this life is only 'a door through the last barrier (our earthly existence) that keeps us from eternal life and the radiant gladness of knowing our Creator face to face'? (Dawn, M; p226)

JESUS' DEATH WE DESERVED, he took

Any Bad events or even people that you wish didn't exist that can be used to draw you closer to God, to rely on him more, to pray more, to love him more than his good gifts (that might temporarily or permanently have disappeared, including this life)?

Any trapping addictions of your natural self that you can 'put to death' today with the Spirit's power? (Romans 8:13)


We have a great high-priest who has suffered everything. He understands the pain and weakness (read Hebrews, partic. 2:18). Get into him.

Refs:

The bible:


-the book of Mark, partic 8:29-30, 9:30, 31, 10:29-31, chapters 11 onwards..or any other gospel for that matter..
- 2 Corinthians 4


-The Case for Christ, Lee Strobel
-'More than a carpenter', Josh McDowell (for a short read...
-'Is the new testament reliable?' Paul Barnett.
-"Being well when you're ill: Wholeness and hope in spite of infirmity.', Marva Dawn. This book has provided lots of inspiration for this post. Credit here!

Things I've learnt #2: I am a control freak

I'm a control freak. It's in My nature to make goals, plans, conjure up exciting visions in my mind about conversations that will take place where ....well, stuff I dream about happens. Where God will do cool things to change people's lives; and of course, I will get to be a part of it somehow. I don't care how, just somehow! But I'm on the scene, in the picture.

Since getting chronic fatigue syndrome, I've been out of the scene, many scenes for a few years now. Those scenes where I can be with people, live life wildly and openly, fully, and verbally and practically share the love of Jesus; making difference wherever I go. So now,  it's like: "What the...?! Why? That really cool plan I had that I was working out with your help, God; that plan did not happen! How come? Don't you want me to be involved in this obviously helpful way? Aren't I useful to you? Weren't you into this plan, like you know, sharing Jesus' n stuff: isn't that what you want in the world? The harvest is plenty, the workers are few etc..? Seriously. Surely this isn't just all my idea?"

Unless I could be involved to make something happen, I just couldn't see how certain things could get done (if nobody else was doing them), those things that I believed God wanted. Retrospectively, I realise I did not believe God was really God.

Some ideas he didn't put in my heart, it was all my dreaming. Not bad, just good dreams. Ironically, though, many of those things he did put there. For example; starting up this outreach group for migrants and international students. Oh yeah. It started alright. God graciously enabled me to begin with a couple of people. But for some weird reason, I got sicker this year, so now I can't be involved. Now others are leading it. It's growing. People are being refreshed by international community, love and discovering Jesus. People are growing. And I"M NOT there!

Began as a small women's english group

It grew to be an all-inclusive bible study group ('09). It's bigger today, but I don't have photos!

I could be useful there, maybe? Or so I thought. But God has not allowed me to be well enough yet to be.
Maybe it's because he wants me to see that HE is literally the one in control, who has the plan, who knows that I'm just a tiny little weak item/package of flesh with a spirit, mind and heart that one day will be rejuvenated after dust- totally without my help.

Oh, I can still be involved! I can pray! God can use my circumstance and my heart for his glory, but he really doesn't need me to boss him around about his kingdom and what it's gonna look like with me at center-stage.

Oops God, sorry! (sheepish face)

That's lesson #2:)

#1 of Stuff God's Taught Me: Gratitude.

This topic is something that my friends have encouraged me to write about. So I'm going to try and do that. This will take weeks to write down possibly, so stay tuned. Dot-points are more easily digested. These come in no particular order, only what's immediate to my mind. Either you're interested in God, or interested in how illness or experiences change you. So hopefully I can satisfy both crowds somewhat but mainly be true in what I say!


 God has....

#1
 Taught me more about daily gratitude (thankfulness!) for everyday things that earlier on I took for granted. Things like air, breath, the ability to stand up or do something for myself. Australia, that provides the pension. A job if I want it. Friends who visit. Food. Family. Water. A roof and heater that works. People who don't abuse me. A spiritual family- my local church and other christians. The internet so I can remain connected to the outside world.

That's some of the basic life/material stuff.

Then there's the Spirit of God with me, despite how I feel. A bible for me to read and feed me. Jesus having taken my punishment on himself. Jesus' perfection given to me. God's patience, provision, gentleness and gracious Love, seen in the daily, occasional and often unexpectedly well-timed provision of all those things I listed in the first paragraph.