I did this a few weeks ago. Cost a lot of dosh. My parents paid. Blood shipped in eight vials to Belgium. Very generous of my parents. I feel Grateful. White blood cell count and activation also will be checked, along with cytokines. It will be interesting to see where things lead given the current scientific debate. I'm reassured though by my parents and doc that it will not be a waste of money or time. Let's hope so!
I'm more skeptical than I'd like to be, but I guess I'm fighting off being let down by a scientific 'red herring'. It's clear that I don't put my life in science's hands! But I am very, very grateful for everything that scientists do for us, and I advocate whole-heartedly and handedly for more of it.
Thank you smart scientists! Keep up the great work:)
I agree that it's not a waste of time. If you come up negative, at least you can add your stats as someone with CFS to the stats already known.
ReplyDeleteDo you mind me asking how much it cost? I'm hoping to have it done for myself and a couple of friends soon, though I've actually no idea how to go about doing so.
It costs the best part of AU$2000.. that's with Redlabs in Belgium. I had it done through my GP specialist in Donvale, Melbourne. I'm not sure if you can do it without another doctor's referral, but I'm sure they would be open to the idea! Best to contact them: http://www.redlabs.be/
ReplyDeleteAll the best with your quest!
As you will know, the science now does not back XMRV for CFS/ME. My results were negative for XMRV, but they showed a lot of other useful information about my blood and immune system which has directed my other treatment since. It wasn't a waste of money even without XMRV in the equation!
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